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In yesterday morning's new Delegation of the Association of Rare Diseases, D'Genes that will be coordinated by the alhameña Caridad Lopez was officially launched in Alhama de Murcia.

In the presentation Charity found accompanied by the coordinator of coordinators D'Genes, Naca Pérez de Tudela and by the Councillor for Social Welfare, Mari Carmen Diaz.

Diaz welcomed the new partnership in the town and its coordinator and also took care to recall some facts about these rare diseases "affecting five of every 10,000 people."

Mari Carmen Diaz said there are an estimated 7,000 rare diseases affecting seven percent of the world population.

"In Spain there are over three million people affected by these diseases and Murcia affect more than 85,000 people," said the mayor of Social Welfare.

Diaz also said that D'Genes was born in the nearby town of Totana and now already has offices all over Spain and in Latin America.

Meanwhile Naca Pérez de Tudela recalled all services are there in the center of Totana, "Carrion Celia Pérez de Tudela".

Attention Online in counseling, psychology, legal services ... The center also has physical therapy, speech therapy, cognitive stimulation and psychological care.

Pérez de Tudela also announced "very soon a new service called friendship therapy which will seek to bring together people with different abilities who are at risk of social exclusion begin to develop."

Finally, he encouraged all those who suffer a rare disease and their families to seek guidance, "do not be afraid to ask, who to ask for help you have to be brave. The rest of us can not help you if you know what it is we going on. "

Caridad Lopez, the new coordinator Gene D'Alhama has said his work in the town will be information and explained how he met this association.

Finally, he stated that the function performed by D'Genes is very important as it aims not only to help patients and their families but to know and study these rare diseases.

To contact Caridad Lopez simply ask at the health center of Alhama de Murcia and in the Department of Social Welfare.

D'Genes will also be present at the next Volunteer Fair to be held on Sunday November 30th.

Source: Ayuntamiento de Alhama de Murcia